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Cystic fibrosis is a lifelong condition that can have widespread effects on your daily life. For example, missing days from school or work and being physically limited in the things you can do are such effects. The best way to manage your condition and improve your quality of living is to treat your symptoms. But how do you know that your treatments actually work? The answer to that question is simple, by assessing your cystic fibrosis!

Some tools allow you to report on different aspects of your cystic fibrosis, for instance, symptoms, impact, treatments, and experiences. These tools enable healthcare providers to assess or measure your condition. In turn, they can determine how well your condition is managed. All of these assessments are considered patient-reported. That means that you or your loved one provides the information that’s necessary to complete them.

How you engage with them will differ. Some of these assessments use an interview-style presentation, while others use self-input options. These are some of the instruments healthcare providers use to assess your cystic fibrosis.

Cystic Fibrosis Quality of Life (CFQoL) Assessment

Do you need guidance on assessing the different aspects of your cystic fibrosis? For instance, its effects on your physical and social functioning, respiratory symptoms, issues with treatment, body image, emotional responses, interpersonal relationships, and concerns for the future and one’s career. Your healthcare provider may suggest you or your loved one complete the CFQoL. 

Cystic Fibrosis Impact Questionnaire (CF-IQ)

This newly-developed questionnaire focuses on cystic fibrosis’ impact. For instance, activity or physical limitations, emotional impact, future outlook, and treatment burden are all accessed with the CF-IQ. 

Cystic Fibrosis Questionnaire-Revised (CFQ-R) 

This questionnaire is similar to the CFQoL because they both assess the health-related impact of your cystic fibrosis. However, this questionnaire assesses your health. Notably when it comes to your physical, emotional, and social health, body image, role/school, vitality, treatment burden, health perceptions.

Questions on Life Satisfaction for Adolescents and Adults with Cystic Fibrosis

This questionnaire is different from the others. These assessments normally look at cystic fibrosis’ impact on your health. However, this assessment looks at your satisfaction with your cystic fibrosis. For instance, it would ask about your satisfaction with your symptoms and other elements of burden.

Pediatric Quality of Life Inventory (PedsQL)

This instrument assesses the quality of life in children with cystic fibrosis. It helps healthcare providers make the difference between healthy children and unhealthy children. Unhealthy children include those at risk for diabetes or other serious complications. So this tool is useful for preventing health complications because of cystic fibrosis.